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North East Ehlers-Danlos Society

WELCOME ZEBRAS

At North East Ehlers-Danlos Society (NE-EDS) we work on making the lives of those striving with Ehlers-Danlos Syndrom (EDS), Hypermobility Spectrum Disorders (HSD), and other rarities, a little bit better every day. By supporting each other, providing feedback, giving ideas, inspiration and more, we strive to make a difference. If you'd like to join, or learn more, our doors are always open!

Upcoming Events

  • Monthly Meetup
    Monthly Meetup
    Multiple Dates
    Sun, May 05
    Virtual Meetup in Discord
    May 05, 2024, 10:00 AM – 11:30 AM EDT
    Virtual Meetup in Discord
    May 05, 2024, 10:00 AM – 11:30 AM EDT
    Virtual Meetup in Discord
    Meet other members of the NE-EDS support group! Checkout our Discord server for this month's topic: #meeting-plans
  • Meet and Greet
    Meet and Greet
    Sun, Dec 10
    Virtual Meet and Greet
    Dec 10, 2023, 10:00 AM – 10:40 AM EST
    Virtual Meet and Greet
    Dec 10, 2023, 10:00 AM – 10:40 AM EST
    Virtual Meet and Greet
    Meet other members of the NE-EDS support group! Last meet and greet our icebreaker to bring a suggestion/idea on how best to ask for accommodations at work. This meet and greet let's brainstorm tips on how to understand and respond to the limitations of your body (which includes your mind!).
  • Meet and Greet
    Meet and Greet
    Sun, Nov 19
    Virtual Meet and Greet
    Nov 19, 2023, 10:00 AM – 10:40 AM EST
    Virtual Meet and Greet
    Nov 19, 2023, 10:00 AM – 10:40 AM EST
    Virtual Meet and Greet
    Meet other members of the NE-EDS support group! Last meet and greet our icebreaker to bring a suggestion/idea on how best to ask for accommodations at work. This meet and greet let's brainstorm tips on how to understand and respond to the limitations of your body (which includes your mind!).
  • Meet and Greet
    Meet and Greet
    Sun, Nov 12
    Virtual Meet and Greet
    Nov 12, 2023, 9:00 AM – 9:40 AM EST
    Virtual Meet and Greet
    Nov 12, 2023, 9:00 AM – 9:40 AM EST
    Virtual Meet and Greet
    Meet other members of the NE-EDS support group! Last meet and greet our icebreaker to bring a suggestion/idea on how best to stand comfortably. This meet and greet let's brainstorm tips on how to ask for accommodations at work!
  • Meet and Greet
    Meet and Greet
    Sun, Nov 05
    Virtual Meet and Greet
    Nov 05, 2023, 11:00 AM – 11:40 AM EST
    Virtual Meet and Greet
    Nov 05, 2023, 11:00 AM – 11:40 AM EST
    Virtual Meet and Greet
    Meet other members of the NE-EDS support group! Last meet and greet our icebreaker was how to sleep well. This time, bring a suggestion/idea on how best to stand comfortably!
  • Meet and Greet
    Meet and Greet
    Sun, Oct 29
    Virtual Meet and Greet
    Oct 29, 2023, 12:00 PM – 12:45 PM EDT
    Virtual Meet and Greet
    Oct 29, 2023, 12:00 PM – 12:45 PM EDT
    Virtual Meet and Greet
    Meet other members of the NE-EDS support group. Nikita nikita@ne-eds.com is inviting you to a scheduled Zoom meeting. Topic: NE-EDS Support Group - Oct '23 Time: Oct 29, 2023 11:45 AM Eastern Time (US and Canada) Join Zoom Meeting https://us05web.zoom.us/j/81855301129?pwd=Jr3C1FYVBqF0N7yqUXhgi3WR

Join Us!

Feel free to view and come to any upcoming events, join our email list, or email us directly, and get to know the latest on what we're up to.

Thanks for submitting!

The Ehlers-Danlos Society

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